My case and shared research data
Two years ago, at the age of 35, I was diagnosed with metastatic rectal cancer. Unfortunately, I am still fighting it. I am sharing my treatment history, imaging, tissue and molecular data to help others study my case.
Outside of being a cancer patient, I’m a statistical geneticist and an assistant professor in Human Genetics at UCLA: My personal website.
Download my curated data ZIP
Latest documented imaging
My PET-CT showed progression in multiple lymph-node regions after botensilimab / balstilimab. The report and treatment history are available; the latest scan images are not.
Explore the clinical recordThis is my research record, not treatment advice.
What I’ve shared
Separate downloads total 35.38 GB across 35 files: six RNA FASTQs, six BAMs with indexes (including Natera matched-normal DNA), a Caris VCF with its index, 12 April PET-CT DICOM series, and CEA, TROP2 and cMET slides. Reports includes 24 PDFs and the JLF and Invoke HTML designs. Pending: additional Caris DNA reads, Natera tumour sequencing and the HER2 slide. June/September scan images are unavailable; April imaging includes selected series. Full release status.
Plans and therapeutic evidence
My plans and source-linked treatment evidence. Established options reviewed 8 October 2026; experimental candidates 7 October 2026.
Clinical record
Evidence labels distinguish my reported plans from documented care.
Longitudinal results
My UCLA and City of Hope results, with source dates, units and methods. Assays remain separate. Coverage is incomplete, and some original reports are unavailable.
Date precision matches the source; missing fields mean “not recorded.” Check original units and methods in the full record before comparing results.
Original evidence & research outputs
Key findings from my reports and research designs, grouped by type and provider. Each summary includes the specimen, date, limitations and original report.
Tumour profile & vaccine targets
My tumour findings, their evidence and connections to therapies. I preserve each report’s classification and distinguish clinical results from research predictions.
Provider files by type and provider. Reports contains the original documents; Research & documentation contains my detailed cross-provider audits.
Files by subtype and provider. Download links appear only for verified public files.
My sequencing and expression data
My DNA and RNA reads and alignments, with specimen, date, assay and reference details. Processed calls and expression tables are in Molecular evidence.
Files by subtype and provider. Download links appear only for verified public files.
Files by subtype and provider. Download links appear only for verified public files.
My data by modality
My whole-slide IHC images, downloaded separately from the curated ZIP. Pathology summaries and documentation.
Files by subtype and provider. Download links appear only for verified public files.
My data by modality
My CT and PET images, with dates and source details. Large files download separately from the curated ZIP. Study summaries and documentation.
Files by subtype and provider. Download links appear only for verified public files.
My research and curated records
My research and cross-provider summaries, with sources, specimen links and evidence status.
Read before analysis
I share these data under my own name for research and reanalysis. Sequencing, processed calls and native images are freely downloadable; some files remain pending. Genomic data can identify me and reveal inherited information.
Stable identifiers link datasets to sources and specimens. I keep originals privately and publish reviewed copies with provider attribution and preparation notes. Findings are labelled clinical, research-derived, patient-reported or unresolved. Missing data do not mean a negative result.
Older tissue may not represent a current node. Check specimens, collection/report dates and reference genomes before combining assays. Do not combine GRCh37/GRCh38 coordinates without documented conversion.
My curated tables and explanatory text use CC BY 4.0; website and release-tool code use MIT. Third-party reports, assay outputs and vaccine designs retain their own rights. Sharing vendor-processed VCFs, expression and alignments grants no license to proprietary methods. Research candidates do not establish a final manufactured product.
Cite: Alexander Young. Open Cancer Data, release 1.16, 8 October 2026. Include the dataset filename and SHA-256 from the manifest in analyses. A DOI has not been assigned.
The manifest and SHA-256 checksums document the data archive. The source ZIP contains the website, structured data, HTML report assets and release tools; PDFs download separately. Serve the extracted Invoke report through a local static server for offline use.
Large files are outside both ZIPs. Find them in the manifest’s external_files and the sequencing, imaging and pathology catalogues, with checksums. Downloads require no account.
For large files, use curl -L -C - -O URL to resume downloads, then verify the published SHA-256 checksum.
This independent project was inspired by osteosarc.com.